Parent Involvement (Insights) Co-ordinator

The Sands Insights Network is an online community of bereaved parents who want to use their experience and knowledge to shape Sands work to make maternity and neonatal care safer. The Network sits within the Saving Babies Lives team which focusses on using evidence, including from parents, to drive improvements in maternity and neonatal safety. The Network also facilitates parents’ involvement in Sands policy and campaigning work, as well as external projects seeking to include people with experience of baby loss. Main Purpose of Job 1. Undertake the day-to-day management of a successful network, building diverse membership and ensuring a safe environment for bereaved parents 2. Ensure the diverse experiences and perspectives of bereaved parents are included in research, learning and improvement initiatives in a way that works for them 3. Ensure the involvement activities are monitored, evaluated and impact is captured and shared 4. Help to build Sands’ reputation as a leader in partnership working, advocating for the inclusion of bereaved parents in research and decision making Principle Tasks and Responsibilities 1. Undertake the day-to-day management of a successful network, building diverse membership and ensuring a safe environment for bereaved parents Grow the network. Engage potential new members and oversee screening and onboarding processes. Create a welcoming space with signposting to enable new and existing network members to navigate and make best use of the platform. Maintain the network as a safe space for bereaved parents. Promote the platform and its impact to Sands audiences. Create and embed Equality, Equity, Diversity and Inclusion (EEDI) principles throughout the network and proactively ensure the membership is diverse in experience and background as the network grows. Work with Research Manager to ensure appropriate risk management and safeguarding protocols are in place and followed. Work with the Research Manager to co-create governance policies/agreements with the network members.Moderate user activities and take actions where needed if policies are breached. 2. Ensure the diverse experiences and perspectives of bereaved parents are included in research, learning and improvement initiatives in a way that works for them Working with Sands teams and with external groups, identify opportunities for PPIE involvement, to provide a continuous range of options for parents to engage with. Engage with network members to develop the community, and create activity based on their needs. Share opportunities with the Network, encouraging and supporting involvement from members. Create a dynamic and interactive atmosphere on the platform, building and maintain relationships with network members, and generating enthusiasm and a sense of purpose. Encourage and facilitate activity within project groups on the network to ensure activities proceed and are constructive and inclusive. Develop and share tools and resources to support parents with the skills and information they may need to be positively involved in research and improvement projects. Lead some involvement activities, including discussion groups, interviews and collaborative working. Work with the Research Manager and the membership of the network to develop and implement a policy for reward and recognition for both internal and external opportunities. 3. Ensure the involvement activities are monitored, evaluated and impact is captured In partnership with the Research Manager develop and embed a framework for monitoring and evaluating activities. Summarise and share findings and outcomes of network projects, feeding into research, service and policy development. Provide regular reports on impact and share those across Sands. 4. Help to build Sands’ reputation as a leader in partnership working, advocating for the inclusion of bereaved parents in research and decision making Build relationships with external stakeholders; support network members to influence people and organisations outside Sand directly, including decisionmakers, influencers, research groups or research funders. Represent network members externally and advocate for their involvement and inclusion in research and improvement programmes. Represent Sands at external events, meetings and activities, helping to build Sands’ reputation as a leader in the field of working in partnership with bereaved parents. General Undertake any other duties commensurate with the role as required by the Research Manager, Head of Saving Babies Lives team and the CEO. Work flexibly and collaboratively with colleagues across the organisation to achieve shared goals. Always maintain strict confidentiality. Adhere to all Sands policies and procedures. Undertake all mandatory training as required. Participate actively in annual appraisals and personal development